Can anybody tell me what day Fibromyalgia awareness falls on this year?  Is it always 12th May?

Many thanks!

Chelsea

I don't know if you are aware of the drug Low Dose Naltrexone (LDN) which a number of people are taking around the world with great success. LDN is a drug that is credited with helping those with HIV/AIDS, Cancer, MS, Fibromyalgia, Chron’s, Parkinson’s, Rheumatoid Arthritis, autoimmune diseases and central nervous system disorders by boosting the endorphins.

 

Autoimmune diseases are associated with a degraded immune system and low beta-endorphin levels. Endorphins are what regulate the immune system and repair systems. They also act to control tumour cells. When you raise the endorphin level, disease progression starts to slow and can come to a complete halt in many. LDN raises endorphin levels.

 

Essentially, taking LDN 'tricks' the body into producing higher levels of endorphins - and the increase in endorphins helps our immune systems function better in numerous ways ... beginning with feeling better, then reducing inflammation, which in turn reduces cell damage and pain, etc, etc. Also stimulating repair cells so recovery is also likely.  Please do look into this.  I am taking it myself.

Yes, it's always May 12th.

Thanks Ellie.  I don't know if any of you are using Low Dose Naltrexone (LDN) but I've heard so many people have used this with success rate.  Their next annual conference is being held in Europe (Glasgow, Scotland) and Dr Chris is registered to attend.   www.glasgowldn2009.com

Low Dose Naltrexone (LDN) which a number of people are taking around the world with great success. LDN is a drug that is credited with helping those with HIV/AIDS, Cancer, MS, Fibromyalgia, Chron’s, Rheumatoid Arthritis, autoimmune diseases and central nervous system disorders by boosting the immune system.

 

As we all know, autoimmune diseases are a result of an under-active immune system by showing low beta-endorphin levels. Endorphins are what regulate the immune system. When you raise the endorphin level, disease progression starts to slow and can come to a complete halt in many. LDN raises endorphin levels.

 

Essentially, taking LDN 'tricks' the body into producing higher levels of endorphins - and the increase in endorphins helps our immune systems function better in numerous ways ... beginning with feeling better, then reducing inflammation, which in turn reduces cell damage and pain, etc, etc.

 

We have started a petition on the No 10 Downing Street website to get the Govt to fund trials for LDN.  Please sign this http://petitions.number10.gov.uk/LowDNaltrexone 

Many thanks, we need your support

How LDN would work with Fibro is likely to be different to other conditions. Fibro isn't autoimmune (and autoimmune conditions are linked to over-active immune systems, not under active ones) in the normal sense, but it does have low endorphin levels associated with it.

Fibromyalgia (pronounced fy-bro-my-AL-ja) is a common and complex chronic pain disorder that affects people physically, mentally and socially. Fibromyalgia is a syndrome rather than a disease. Unlike a disease, which is a medical condition with a specific cause or causes and recognizable signs and symptoms, a syndrome is a collection of signs, symptoms, and medical problems that tend to occur together but are not related to a specific, identifiable cause.

 

Fibromyalgia, which has also been referred to as fibromyalgia syndrome, fibromyositis and fibrositis, is characterized by chronic widespread pain, multiple tender points, abnormal pain processing, sleep disturbances, fatigue and often psychological distress. For those with severe symptoms, fibromyalgia can be extremely debilitating and interfere with basic daily activities.

 

Whether you have been diagnosed with fibromyalgia or suffer from its symptoms, or have a family member or friend with the disorder, this section is designed to provide you with a better understanding of this chronic pain disorder that affects millions of people worldwide.

 

http://www.addictionsearch.com/treatment_articles/article/naltrexone-and-its-multiple-uses_78.html

Hi there,

 

I'm in ireland too, and I just wanted to tell you that there is great news in the research front with fibro.

 

Have a look at www.wpinstitute.org as they have discovered a virus is responsible for fibro.

  If they have a cause then the next thing is a cure.  Have a look at the presidents mission statement on the site plus the Q and A in the research section.  Also the newspaper articles recently published around the world when the news came out.

 

I'm a single mum too and have felt like death for the last ten years or more, this is the first time I have felt real hope, after lining the pockets of many many "healers' who said they could cure me.

 

Yes its very isolating, email back if you can.

All the best

 

Helen . Limerick

Unfortunately in a way, the research from the Whittemore Peterson Institute applies more to ME/CFS than Fibro and even then may only apply to a subset of people diagnosed with ME/CFS. Although patients with a diagnosis of Fibro were included in the latest research studies, the institute has noted that the numbers were very small and that it is possible that they had the retrovirus linked versio of ME/CFS as well as of instead of Fibro.

However, there is a lot of research done and ongoing about Fibro specifically and a lot is actually known about it. Getting effective treatment is the hard bit as specialist doctors are few and far between, treatment requires significant commitment from patients, specialist physio and massage are often needed and may not be availabke locally and, even in the UK, treatment can be expensive.