here is coming 12th May, Fibromyalgia Awareness Day, for those who suffering with this life changing illness, like myself, it is very important to make everyone more aware that this illness is becoming more and more wide everywhere, and yet so very little is known about it. I am going to write AGAIN to Dr. Chris, like i did for the last 2 years but had no luck, to see if can do his homework on this awfull illness and talk about it at least for little bit so people know there are some illnesses around that can't be seen but my god can be felt, hope other's with this illness can do the same and see what happens.

Ellie

hi julie k, n tnx for yr reply, if you go to page3 on health section, you'll find a big thread which has been going on for sometime about Fibro and lots more to find out if you just type Fibromyalgia and search for it, it's such a long subject to explain, but you'll be amazed how this illness affect those of us who have got it, tnx again.

Ellie

hey ellie :) its beth, i havnt been online for a while and was wondering how your getting on?i tired to find the other fm posts but couldnt. Hows ure feet these days?has anything else helped?

 

love beth x x x

Hello Ellie, may I ask, how did you get Fybro? I got M.E\fybromyalgia from a trauma, then hadflu, head and body shut down. I walk with a crutch, only half my throat works so swallowing and breathing can be difficult sometimes. I have trained myself to walk better, and can now walk for an hour and a half. I have vision problems due to the exhaustion, and no balance on my right side, but I still lead a normal life. Though it is so hard. I have decided to find a way of helping myself, and am now taking Bimuno, that Dr Chris told us about last year, it gives me more energy to do stuff. I take omega 3 fish oil, and 1 ml of echanicea, glucosamine once a day, and vitamin b12, which for some reason eases the spasms, and wakes me up. I also bought a cd of Paul Mcenna for phobias, as it is the phobias that was making me anxious. I am determined to get my life back. I would love to hear more about you, and how you are doing? Take care, best wishes,scooberuby.  

Hi, this is the first time i`ve used this site. I think i have Fibromyalgia, but i need to speak to my GP. I also have ME/CFS and theese two illnesses seem to go hand in hand.

I watched Jo Guest on This Morning, does anyone think she may have a form of Fibremyalgae?  I developed symptons following the birth of my youngest son.  Firstly, I came down with the worst flu I have ever had and spent 2 weeks in bed, this cost me my job and I spent 2 years on sickness benefit because I just couldn't pull myself together.  I seen Specialists, including a renowned professor and no one could find anything wrong, apart from my liver wasn;t as efficient as it should have been.  I was told to lay off the alcohol (I don't drink).  20 years later, I have still not had a diagnosis. I have had numerous lumps removed and the biopsy indicated discoid lupus.  My joint pain has been somewhat controlled by a magnetic bracelet, although  I still get attacks where my stomach bloats, constant bowel movements, head and neck ache, itchy lumps all over my head and shoulders,and the hip and knee pain has all but immobilized me, sheer force of will gets me up in the morning as it is much worse if I stay in bed.  I haven't had the test for Firbromyalgae as I am told there is no treatment and therefore no point but I could have it if I wanted.  I just call it Fibrolupisme Disease because there are so many similarities in this sort of illness and Mine just doesn't fall into any particular one.

hi, I didnt see the program, my friend told me about it, and i saw the video, as a fibrite and a support group organiser Jo seems to have the symptoms of Fibromyalgia.  It can be hard to diagnose as it can mimick other ailments, once others are elimimated the symptoms add up.  I've been doing a bit of research and there seems to be a link between Vitamin D definciency, Seasonal Affective Dissorder and Fibro.  The only 'Test' for fibro are the tender points on the body, there is no cure but there are ways of coping with the illness such as hydrotherapy, diet, and cognetive therapy.  I try to help those who have isolated themselves as they look fairly normal no-one believes them, so they lose thier confidence, but i say to them, 'DONT SUFFER IN SILENCE'.

derby fibro:

hi, I didnt see the program, my friend told me about it, and i saw the video, as a fibrite and a support group organiser Jo seems to have the symptoms of Fibromyalgia.  It can be hard to diagnose as it can mimick other ailments, once others are elimimated the symptoms add up.  I've been doing a bit of research and there seems to be a link between Vitamin D definciency, Seasonal Affective Dissorder and Fibro.  The only 'Test' for fibro are the tender points on the body, there is no cure but there are ways of coping with the illness such as hydrotherapy, diet, and cognetive therapy.  I try to help those who have isolated themselves as they look fairly normal no-one believes them, so they lose thier confidence, but i say to them, 'DONT SUFFER IN SILENCE'.

Hello,

Could you tell me where I can find out more about this condition ? as I have had the same complaint since

July 2007 , having had several tests my doctor is now saying that is stress related , and there is nothing

wrong !! my stomache is 3 times the size of Jo,s I feel sick all of the time , tired .

Anyway I am glad to see that there are  other people who have similar and maybe help.

Thanks

santapola:

Hello,

Could you tell me where I can find out more about this condition ? as I have had the same complaint since

July 2007 , having had several tests my doctor is now saying that is stress related , and there is nothing

wrong !! my stomache is 3 times the size of Jo,s I feel sick all of the time , tired .

Anyway I am glad to see that there are  other people who have similar and maybe help.

Thanks

hello my name is panners and this is the first time i have been on this site and this is because i have just watched the interview with jo guest which my husband recorded for me. as soon as i saw her my heart felt for her and within seconds i said to my hubby shes got what i got and i just had to come on the website to see what i could find and i was astounded to see the comments on this forum with regards to FIBROMYALGIA. i have been diagnosed with the illness since jan 2004 after havin the symptons two years previous to that and every kind of therapy going which unfortunately intensified my pain. when i was diagnosed i was discharged from orthapedics into the care of my g.p. to recieve regualar painkillers and since then other medications to try and help me. i have mainly all the symptons described in all the forums by other sufferers and possibly some new ones which maybe can discuss some other time..When i was diagnosed i was left in the dark and it is true it should be renamed the mystery illness i got my first symptons at the age of 27 and any info i have found has been on the internet from medical encyclopedia but as im sure many sufferers will agree these can only offer very minimal advice and info but never the less worth looking into. since i had my illness it has worsened although i try not to let it beat me at this present time it has but i will not give up as i am only young with 4 young children.i was told it was all due to the stress of a young family and some serious illnesses i had during my pregnancys but im not convinced. i have not known or spoken to anyone with this painfull and awful illness ever since i have had it and im so glad i watched the show today which has led me to this site and i hope to get to know all of you in this forum  and chat about our illnesses and share advice with each other and together we can all unite welcome any newcomers as you have welcomed me maybe even jo guest god bless her i hope we r all wrong in thinking she may have what we do but it was just like i was sat there discussing my symptons as im sure you would all agree. i hope i havent bored you and please research the medical sites. i am awake now as in pain and cannot sleep and had my daily dose of painkillers i wish i could wake and this is all a bad dream my best wishes to all of you and i really hope that today i have made some new friends that understand my life .

hi ive just logged onto this website for the first time and wrote a reply to a new user i have had fibromyalgia for 6 years now and diagnosed 4 years ago i didnt even know there was an awareness day for this illness i look forward to talking to you and all other sufferers on this forum very soon

Hi, you need to see a Rhumatologist if you have all the other symptons as well. Good Luck ..............You may have a good doctor who is aware of this sort of disease.. Many will not discuss it at all   Beutrossx

Hi - I was diagnosed with Fibromyalgia last year.  I have had arthritis for over 20 years and this was masking the Fibromyalgia.  I have a brilliant consultant who found 16 symptoms pointing to Fibromyalgia.  It is very difficult to diagnose and he was pretty chuffed with himself!   Can't say I shared his delight.   I did not know there was a Fibromyalgia Awareness Day.  I am always pleased to learn more about this disease and how to control it, especially without drugs.  annemmone

hello

I have had fibromyalgia and chronic fatigue syndrome sine 1999 after a car crash causing whiplash, 4 months later having a major op

 Jay

 

I e-mailed the show yesterday, but as yet had no reply.