Hi Nin I have order the book so am waiting for it to be delivered. Cant wait for it to be delivered. I hope I find it as much help as you have found it. Donna

hi i am new to this site. i saw the programme with jo guest and looked into fibromyalgia on the www. i took a questionaire on an american site and my results were that i was 87% likely to have it! i have been suffering for the past 25 years having numerous tests etc for hypothyroidism etc with negative results.the past 8 years i have been on anti depressants that have helped to a degree but i usually have a foggy head and i hurt especially if someone was to prod my legs OUCH!!! and i also get flu like symptoms that dont develope into flu or a cold. anyway when dr chris also mentioned the corvalen powder i got some which came yesterday.  the trouble i have now is do i take it?? i have heard conflicting information fors and against and i dont know what to do.why is it that some treatments suit one person and not another?? i just wish that someone can give us a pill and say take this and you will feel right as rain! there seems to be alot of people world wide are suffering from this why isnt there a definate treatment! is there research going on at the moment?

is there anyone out there that have had positive results in taking corvalen and if so how long did you take it before you noticed a difference in your life.x

Hi I think most of the so called studys are both for and against it. They dont half like to make our probs ever harder to deal with. I have been holding off buying it in the hope the this morning will show us more info and results when they have Jo back in and see how she has gotten on. The price of it has come down since the tv show so that always helps. Good luck with it and let me know how you get on. I am waiting for the book mentioned in someone elses postings and will see how that goes. Donna

hi Donna, thanks for that! i have started taking the powder and so has my husband who doesnt suffer!! we have decided to do it together to see what happens! Do you know when they are bringing Jo back to This Morning??It will be interesting to see if she is taking it and how she is feeling.I hope that they do a bigger item on Fibromyalgia it does seem that there are alot of sufferers out there.I would be interested in how you get on with the "book" good luck with that.  Linda

hello everyone, all i can say is, in my painfull and life changing time with FM, since 2004 which has been dignosed, but goes back way before that, i have read as many books as i could possibly read, as well as trying to find out more and more about FM, but end of the day, what works for one might not work for other, and i find it in my case no matter what i do or don't pain is laughing at me all the time,lets hope some of you dont go through what have and still am going. the main thing is, no matter anymore where it came from or where its going, its now that am having so much problems coping. take care all.

 

Ellie

Hi Donna, how great that the book  "What your doctor may not tell you about Fibromyalgia" by Dr Paul St Amand is on its way to you!  Ellie and Linda (Linaloo)........I can't recommend this book highly enough, as you were asking for a pill to make it all go away? Well this book tells you what tablet to take and what to do in order to recover from CFS/Fibro and remain well for life!  I am living proof (amongst many others on the UK support site mentioned at the back of the book) that this pill works.

 I am at last recovering after having all the symptoms that you mention, being house bound and unable to walk because of severe fatigue and pain. I can remember at one point (three years ago) that I couldn't even read whilst lying down and if I walked the stinging pain was unbearable, so I had to buy a miniscooter for indoors as a wheelchair would have taken too much energy. Eighteen months after starting this treatment, I can now walk again around the house! Brainfog, depression,anxiety,IBS are all gone and most days I'm either pain free or just abit sore from doing too much!  Energy is gradually increasing every few months so that I can do a little more.  I've tried everything (therapy wise) and I think that this is the only treatment for people with CFS/Fibro that is worth trying. Buying the book will be the best thing for anyone to help themself  recover, if they have CFS/Fibro.

 I daren't mention too much about it in case my post is edited, but it works at a physiological level. It will correct the problem that is affecting energy production and is responsible for all our symptoms. In a nutshell (through American research, we have a retention issue involving the kidneys, a problem similar to gout (but not uric acid). This book will answer all your questions. Buy the book and join our support site and be supported by sympathetic and caring people who want to help you get well too!   Best wishes, Nin

Hello everyone, this is my first post here.

I have suffered with fibromyalgia for 12 years and tried lots of different things which dont work, a few days ago I started taking the Corvalen and im hoping that this time I have found something, only time will tell. 

 

hi every one this is my first time  what is that  Corvalen    n where do u  get it from

i have had  fibromyalgia  11 years after me  daughter

lynda

Hi Lynda, Corvalen make a product called D-Ribose, which is supposed to give one energy. It is extremely expensive as it's necessary to take alot of it daily. I took it for a whole year three years ago whilst suffering from severe fatigue and muscle pain. I found that it made absolutely no difference whatsoever to my energy level. My purse just became very empty (very often) instead!  As many of us appear to develop hypoglaecemia at the same time as Fibro (as I did), I must warn you that taking a high sugar supplement like D-Ribose will actually worsen symptoms of pain, fatigue and sleep. If I were you, I'd avoid sugar, carbohydrates and eat only one piece of fruit every 4 hours (no bananas) and see if you feel better for doing this for a whole month. The best thing you can possibly do in order to educate yourself about CFS/Fibro and get well again, is to buy a book called "What your doctor may not tell you about Fibromyalgia" written by an eminent Endocrinologist and CFS/Fibro expert called Dr Paul St Amand. It highlights a treatment for CFS/Fibro which is possible to obtain on the NHS (I get it), with the help of a supportive doctor. I am recovering on it and I had tried everything else!The book will answer all your questions and there's an excellent friendly uk support site to join (mentioned at the back of the book). Hope you feel better soon and are able to read the book.  Nin

Hi Andy, I'm really sorry and incensed that you're going through such a stressful time at the moment with the possibility of losing your DLA. This is absolutely horrendous, as not only does stress worsen our symptoms, it's so totally uncalled for! Anyone with ME/Fibro is entitled to DLA and especially someone as incapacitated as yourself, so this decision regarding your DLA is unbelievable.I had to make an appeal (and fortunatley won) when dealing with a well known Income protection insurance company so know how stressful this can all be. However, having filled in a DLA pack each year, I haven't had any problem with them, so can't understand why you are having so much grief. There must be a mistake. Have you contacted your doctor about it recently? May I make a suggestion that you contact the Disability Law Service? They are a registered charity, offering free legal advice for disabled people, their families and/or carers; hopefully they will advise you and help with your appeal.  Have you filled in a DLA application pack recently? Surely you should be able to get the higher mobility rate and full care allowances because you are so ill and immobile? Do you have any relatives or friends who can help you with this dilemma?  Best wishes, Nin

hi Nin, after looking on the net i have decided to change my diet completely,if im honest i have been grazing on junk foods cos i have felt so rotten.like choc,crisps,chips i have also been eating my veg and salad!! so im going to cut out refined foods and opt for complex carbs and fruit and veg (boo hoo) i shall try this for a month to see if  there is a shift in my energy and well being. i shall let you know on here how i do i dont think i will continue on the corvalen either just to see. i'd much rather try a natural method before i result to more pills!! i shall certainly look out for the book too! its nice to be able to talk about this on here as i think im boring my husband to death!! the kidney thing to me makes alot of sense and the gout like symptoms! take care, Linda

Hi Andy, I had trouble getting my DLA back again after they decided that I was better, so when I tried again 1st I wrote to my gp telling her how my disability affected me so she knew excatly how bad I was and told her that she would be asked to fil in a DLA form for me.

 Next I filled out the form and where it asks, how far can you walk and how long does it ake you, I put 0 and 0, you also have to write the words sever discomfort and sever worsening of pain, alot, you have to repete yourself all the time, I finaly got my DLA back the day I found out I had Fibro, and my Pain Clinic Dr said that I would not have a problem anymore in getting it again.

 I hope this helps you as I know how hard they are making it to get.

Good Luck

Jaki

 

Hi,

I was amazed to read your message today.  I am called Jayne with a "Y" and live in ******* ****** also suffering with FMS for about 4 years!  At first I thought it was me who had written the message!  My Doctor gave me the prognosis of FM about 4 years ago, when I started feeling so fatigued and in pain round the neck, shoulder, hip, knee (all down left side). Like you, he gave me Amitryptiline, but they just made me feel so groggy and "hung over" next morning, I stopped taking them.  I've seen Osteopaths, Acupuncturist, Chiropractors, a Rhematologist, a Endriconologist, a Shiatsu Masseur - the lot!  I appear to have a slight immume system problem according to the Endriconologist at Clatterbridge - but not bad enough to treat - great!  My G.P. just shrugs and says pain killers is the only way to cope.  I do feel better when I play tennis or go to the gym, but some days I cant even get out of bed and dont get dressed until 4pm!  The flare ups seem to occur after I've been stressed about something, or if the weather is very damp or windy (may be not related), but on holiday, when there's no stress, and the warm sun is on my body, I feel fantastic!  I get so low someties, because people think you look fine and are just being lazy.  Where do you go to talk about this terrible, "invisible" disease?

 

Any help and advice would be great.

 

Jayne Caveen
 

Hi Jayne

Sorry to hear you are feeling low.If you want to talk to someone or get more information, try the FM website ukfibromyalgia.com where you may find a support group near you or just someone to talk to on the phone.The symptoms that you mention are probably down to FM.There are better painkillers and other medications that you can get through your GP (you may have to suggest them).As to the weather, it seems that damp spells can increase symptoms due to air pressure.I feel that maybe you aren't pacing yourself enough e.g only do anything for15-20 minutes (go back to task later)Have at least 3 or 4 rest periods during the day.Plan your day according to how your body feels and lastly TAKE NO NOTICE OF WHAT OTHERS THINK----You are a brave person coping with a difficult condition and there are lots of us out there who are feeling just like you .We have plenty of tips to help you cope and understand how you feel.Avoid STRESS as much  as possible Try to put yourself first(difficult) and don't try and keep up with others if you can't,it's your life after all!

Hope some of this helps and take care

Marilyn 

Hi Jayne

 I have to live close to you as I go to clatterbridge aswel, I have FMS and was diagnosed last year after 22 years tryin to get someone to listed to me and find out what was wrong, I have found talking to others who suffer the same is very helpful especial as you do not feel alone and can find ways of telling friends and family how you feel can be hard to explain, I found an explanation that seemed to fit and my friends and family understand a little better how I feel, ask them to remember the worst flu they ever sufferd and then tell them that you feel like that most of the time, tired aching headaches listless and painful joints all the time.

 Jaki