Re: Fibromyalgia Awareness Day

  •  04-30-2008, 12:32 PM

    Re: Fibromyalgia Awareness Day

     I must say that we don't miss the 'manicured' look of Cheshire and all the traffic and crowds of Chester and the Wirral, which always comes a shock when we come back up to visit my mother and family!  I feel a real country bumpkin now and prefer the lanes here with grass growing in the middle and all the Spring flowers and foxgloves growing in the hedges! I do miss the treat of shopping in Chester though!

    Well done for going to buy Dr St Amand's book "What your doctor may not tell you about Fibromyalgia" as it's the definitive book that everyone should read who has this damned illness. However, you made me laugh about taking the cough medicine! That was a waste of time ha ha! You were right to order the tablets, I'm on those from the NHS, although I'm not sure that e-bay is the right place to buy such things, as how do we know that they're not counterfeit? I'm sorry to say that if you're determined to get better (as I was) there's absolutley no point in you taking the Mucinex until you have read the book and replaced your 'mint' toothpaste and all your make up and toiletries to ones without plant based oils in them, otherwise you will stop the guai from working! 

    Don't worry about not having reached the maximum eighteen trigger point test, as you can still have FMS with far fewer than that. If you feel your body and limbs (as if smoothing a sheet) you should be able to feel differing sizes of the tell tale lumps and bumps of Fibro (like the size of the top of an egg or an orange or alot bigger). MFPS should still respond to guai. People who don't have FMS won't recover on it, such as people with 'just' hypoglaecemia for instance, whose symptoms can be easily be mistaken for Fibro. As you say, it's depressing that's there's no cure, but because our illness is genetic and a retention problem, at least the Mucinex addresses the physiological cause and helps us to recover and stay well for as long as we're on it, which of course means for life! Even if people are unlucky enough not to have it prescribed on the NHS (as I do) it's still only about £100 a year to have your life transformed from pain and fatigue! The cost of the tablets and learning to use different approved make up and toiletries (which becomes easy) is a very small price to pay for regaining one's health don't you agree? All I can say is, that when I read the book and realised how logical and apt it all was, I couldn't wait to go on the tablets and have never looked back!  The uk support group is essential to join though to be successful. I'm walking again and feel so much better for the lack of stinging burning pain. My energy is gradually increasing and brainfog, memory and sleep are better too!  Good luck and happy reading!             Best wishes, Nin

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