Hi Jayne, I'd love to be able to help you but don't know how to pm you on here do you? Sorry the previous post was only half, so it must have appeared abrupt! It disappeared into the ether I think!  I'm glad you've been able to mail Fiona for help, as you say, about getting on the Guai site and what tablets to buy. We'll all be able to ...

Hi Jayne, yes that's a great sign if you back feels more sore! Something's happening & it's being re-aligned by the muscles. Glad you drank loads of water. Can't believe you were in MDR last March! What a fab holiday you must have had. My hubby would love to to hire an RV there too! Just think you could have been examined by the doc himself ...

Jayne! I've just remembered that you had Bowen therapy two days ago? Well, did the therapist tell you that you should drink a glass of water at least every hour for the rest of the day? Otherwise it's possible to have 'flu' type symptoms? I did if I forgot to drink! I had Bowen therapy on/off for a couple of years awhile back and found it to ...

Hi Jayne, you're quite right to want to explore all the issues and I'm sorry that you're having such a rough period at the moment. This is how it goes isn't it with this 'cyclic' disease? Don't forget that Guai isn't a cure though, only a treatment, and hopefully it'll work for you as long as you take it, which will have to be for ...

Hi Jayne (the pain!) that does amuse me! Ha ha! This question about not being able to use other products made from plant based material puzzled me too in the beginning, but it's to do with not bombarding the same renal tubules in the kidneys where they'd compete with the Guai. There's a good explanation in chapter four. If you ...

I'm so relieved for you that after 22 years you have at last had your diagnosis. There's nothing worse than having this 'invisible' illness, looking well most of the time (but feeling awful) and having some friends and family thinking that you're a hypochondriac and are ok really! Grrrrrrrrh!  I don't know how you cope with young ...

Hi Jaynethe pain! I've just had the first part of my post edited, so just wanted to say 'again'  that I'm older than you by nearly ten years and worked primarily at Bromborough when I was 21, so we sadly won't have met. I'm originally from bebington before moving to south Cheshire (when I married) and now have lived ...

 I must say that we don't miss the 'manicured' look of Cheshire and all the traffic and crowds of Chester and the Wirral, which always comes a shock when we come back up to visit my mother and family!  I feel a real country bumpkin now and prefer the lanes here with grass growing in the middle and all the Spring flowers ...

Hi Donna, I'm sorry you've bought the wrong book, but the one with 'fatigue' in the title will be a very useful one to have as well, especially if like me you turn out to be hypoglaecemic too! There are loads of recipes for being HG and tips on exercising with Fibro as well as other important issues. I'm not allowed to put web ...

Hi Jayne and Jaki, how great to be posting with people from the Wirral, where I'm originally from! I used to work in Nat West bank in Eastham! I'm sorry that it's taken 22 years to get a diagnosis. I had the eighteen trigger point test done by a Fibro specialist although my doctor would have known to do it. I now live in West Wales and moved ...